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Profile Last Updated: 04/08/2021 Grant Information Last Updated: 04/10/2021

American Porphyria Foundation

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Purpose and Activities

The organization is dedicated to improving the health and well-being of individuals and families affected by porphyria by enhancing public awareness about porphyria, developing educational programs and distributing educational material for patients and physicians, and supporting research to improve treatment and ultimately lead to a cure .


Established in 1982 in TX


American Porphyria Foundation

Public charity




4900 WOODWAY DR STE 780 Houston, TX United States 77056

Contact Information